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Doctors cured her sickle-cell disease. So why is she still in pain?
Gene and cell therapies bring fresh hope to people with genetic disorders, but recovery can be complex and long-term support remains sparse.
New Hope for Treating People with Sickle Cell Disease
Improving sickle cell care by expanding treatment options, advancing new therapies and amplifying the voices of people with the disease
What To Know about Sickle Cell Disease (SCD)
For people with SCD, hemoglobin S (a mutated protein that transports oxygen) causes red blood cells to become curved (sickle-shaped) and stiff. This
Stroke rates increasing in individuals living with sickle cell disease despite treatment guidelines: Study
The incidence of stroke continues to increase for adults and children living with sickle cell disease (SCD), despite the Stroke Prevention Trial in Sickle Cell Anemia (STOP) establishing standards of care like transfusions and tests to measure blood flow in the brain for those deemed high-risk,
Innovations In: Sickle Cell Disease
Illuminating the experience of people living with sickle cell could improve patients’ lives and enhance all of medicine Improving sickle cell care by expanding treatment options, advancing new therapies and amplifying the voices of people with the disease
Hospital staff raising awareness for sickle cell disease
Staff at the Tomorrow Fund Clinic in Hasbro Children's Hospital wore matching t-shirts to try and raise awareness for sickle cell disease.
The promising sickle cell disease treatment being studies at St. Jude
Memphis has some of the highest rates of sickle cell among babies in the entire nation. For this Sickle Cell Awareness month, St. Jude Children's Research Hospital is highlighting how they are working to bring a new era of hope for kids with the disease.
Stroke Rates Rising in Adults and Kids With Sickle Cell Disease
Stroke rates continue to rise among adults and children living with sickle cell disease, despite new standards of care meant to lower their risk, a new study finds. People with sickle cell are vulnerable to strokes caused by a blood vessel to the brain either bursting or becoming clogged,
KSHB Kansas City
23h
'It's Sickle Cell Awareness Month': 10-year-old sickle cell patient holds blood drive to raise awareness
Bam was diagnosed with
sickle cell
disease
during a newborn doctor's appointment. He sometimes suffers from "excruciating ...
The Advocate
14h
Sickle cell disease is debilitating — still, patients struggle to receive care in Acadiana
Sickle cell patients say they struggle to receive appropriate care, especially in emergency room settings. Overcoming some of ...
3h
'It touches so many different people:' American Red Cross hosts sickle cell blood drive
Wendy Tabron, American Red Cross -National Biomedical Partnership Officer, said the Red Cross needs blood every two minutes. ...
WJHG
23h
2nd Annual Walk and Awareness Day for Sickle Cell
BONIFAY, Fla. (WJHG/WECP) - Bringing awareness to
sickle cell
disease
, one walk at a time. Friday, on Newschannel 7 at 4 p.m., Shenika Richardson and Sheryl Johnson, stopped by to spread the word ...
16h
Mississippi Gulf Coast Pan-Hellenic Council raising sickle cell disease awareness with blood drive
The Mississippi Gulf Coast Pan-Hellenic Council hosting an upcoming blood drive to spread awareness of sickle cell disease.
BlackDoctor
1d
The Unbreakable Bond of Two Siblings Living with Sickle Cell
For A'Niyah and Solomon, growing up with sickle cell has meant learning to live with unpredictable pain crises and managing ...
thewhistler.ng
7h
New Dawn for Sickle Cell Patients As LUTH, Foundation, Others Collaborate On Treatment
To bridge the healthcare gap for individuals living with Sickle Cell Disease in Nigeria, the Sickle Cell Foundation Nigeria ...
2d
on MSN
Health Matters: So You Have The Sickle Cell Trait, Here's What You Should Know
Sickle cell trait (SCT) differs vastly from sickle cell disease. SCT is a genetic condition when someone inherits one sickle ...
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